Thursday, August 21, 2014

...idiot light...

Being laid up for a week, I understand how people can become slightly addicted to the Hallmark Channel. Their stories, and maybe it's the hydrocodine talking, are all rather similar to mine. That character, who is down on their luck...in a small town...learning the ropes...and Harry Connick Jr. is their neighbor...it's just like my life...the meds seemingly kicked in. But there I was, not used to laying in bed having someone else do my job for me. It tripped me out. All of my triggers were tripped and while I was icing down my new hip, possibly enjoying these moments of solitude...I was trying not to have a nervous break down.

One friend boldly mentioned to me "...in 4 months, when all you want to do is walk into your bedroom and shut the door, you'll miss these days." She's probably right. Hearing the nightly noises that I usually hear first hand through a baby monitor from the other side of the house, it felt eerie. Depending on people-trigger. Letting go of control-trigger. All the while having to remind myself that a break from life now meant a new lease on life later. More over, looking forward to not being physically broken down like some old car that has 3 idiot lights glaring on the dashboard...low fuel, turn signal light out, service engine soon...

Having to physically slow down taught me a lot. Having complete strangers attaching monitor probes to my most personal regions taught me more. It seemed that about the time I finished telling one person wearing medical scrubs my personal history, I was having to turn around and tell another one. Every word coming out of my mouth probably disconcerting to them. At this point I tell what has been a rather emotional story more or less in a matter-of-fact manner...it's just been my life, as common as the gray hairs on my head.

Every time I was forced to hear the words coming out of my mouth, sort of put into perspective for myself how far I've come. In the past at this hospital, I was never the one wearing the backless gown. I was never the one being probed. I was never under the scope...I was always sitting next to the bed of the person who was. Quickly, very quickly, I became more aware of all I had to lose...all I had to live for...those four reasons I can't walk into my bedroom in the middle of the day and shut the door.

I stressed for weeks that this surgery was no big deal to my kids...mind over matter? Maybe. More like 'someone who is going to this hospital and will indeed come back home' is probably more where my head was. I didn't want to impart any unnecessary fear in them...and maybe at the same time reassure myself. I've never had a surgery. I didn't know what to expect. I had plenty of people reassuring my that this thing would be a breeze...the two people would tell me some horror story of how they caught staph infection...well, that's reassuring.

So, now I'm a week and some change out of surgery and I'm doing better than I had expected. The mere act of shaving one's legs is life altering at times (clearly I'm easily pleased) and in four days my staples come out. It's crazy to think of what my body went through in such a short amount of time. However, it's crazier for me to think of what my mind went through in these last few weeks. I have a new appreciation for those I didn't get to take care of for a bit...and an understanding that you could never be a failure by letting people help you when you need it...they're just trying to help you turn your idiot light off...

Wednesday, August 6, 2014

...black and white...


I’ve always considered myself a ‘grey area’ person. Always someone who sees a situation, good or bad, and looks for the silver lining, as it has become a way of life for me. Someone who can always see both sides of a story, situation, or problem. Not in a condescending/self-righteous way, just as a means-to-survive-to-the-next-day sort of person. Some might call such an insight on life ‘Polly-Anna’ but thus far it has seemed to work for me…until it didn’t for a bit. Those who know me well, know the saga of my life. Nothing from a Monday-Night-Movie, but it’s been interesting/trying nonetheless. Little did I know what phrase set me into the stratosphere until I finally heard it? “…Abe’s urine sample had blood in it…” And, that was it.

We have always had our kids tested for kidney disease. It might seem sort of ‘doomsday’ but when one parent has it, error on the side of caution. Jason had it. It was a big part of his life, even though he rarely mentioned it to anyone but me. He was constantly remarking that because of it, I would never outlive him…it was a sort of honest but treacherous way to live. We started getting the kids urine samples at their yearly check-ups and that was that. Now, not to make excuses, but I’ve had a few things going in the last year…so it was very due that we have a check-up. All came through their awkward urine collections fine. Nora walked out of the bathroom at the medical group saying, “…now THAT was really fun!!” She, however, wasn’t the one collecting it. I figured we were erring again on the side of caution, all would be well…until it wasn’t.

 Jason used to say “…if they call you the same day as your test? Yeah, well you’re pretty much screwed. No news is good news…” Then I get a call from the Medical Group. I figured it was to remind me of something unimportant and almost dismissed it. I answer it, and find out that Abe’s test came back with some issues. My heart sank. Was I that much of a fool to think we could escape this issue? Did I actually think that we’d catch a break on this one? My heart was in denial…

They had found blood in the urine test. In my head, screwed up as it may be, I immediately went to Abe dying of kidney disease. All of the whoop la and talk that I’ve given others, not to mention myself, went out the window. I went straight to death before ever comprehending that it is ALL TREATABLE. My head reeled and heart sank as they were telling me the next procedure they were wanting to do. All the while I went directly to BLACK AND WHITE…never grey, as I had been for the last dozen years. My mind was saying “…this boy that you love is going to die…How are you going to deal with that?!”

 For about 6 hours I just did. I didn’t want to scare him. I didn’t want to tell our family, as I feared they too would think the worst (sorry I didn’t have more confidence in you, but I honestly didn’t have it in myself). I played it off as a ‘non-issue’ perhaps the fact that Abe hates drinking water or maybe his kidney has a ‘cold’ or something. But, the fact of the matter was…I was terrified, for about 6 hours. Then, I pulled myself up and simply said NO. I realize that is a stupid thing to do. Smiting God. Thinking that I had ANY CONTROL on the situation. I kept reminding myself of one thing…Abe.

The kid is amazing…don’t get me wrong, he can drive me up a tree. But, the kid has this crazy resilience that is unlike anyone I’ve known. He is this great kid, creative mind, basically he’s a one-of-a-kind human being. There would be NO black and white with this matter. He would not be stricken with this, at least not yet, as he had so much to give and so much more to learn about life first. As if my worries were literally taken off my shoulders two days later. His kidneys appeared fine under examination. He would need to come back in six months for another test. For now, while I’m trying not to be ‘black and white’ about the issue, I know we have bought ourselves time. I know that we cannot escape this VERY MAJOR issue that their dad had. I know that we will have to continually deal with it from year to year. And, it's treatable. However, now I know that to me, it doesn’t have to scream a death sentence…moreover, it’s a reason to celebrate the fact that we all are still living…

 

 

...good-bye summer...


Pulling up to eight-one-five that day, I knew I would see changes… I knew that things would look different. Little did I know the fall-out mentally that would ensue in the hours/days afterward. How does one put a term to what I was feeling? It wasn’t that of a spouse. It wasn’t that of a child. It wasn’t that of a sibling. It was all of those on another level. Pulling up to the house that I have found comfort, refuge, even spiritual significance in looked different…very different.

 I was blessed in the spring, thank you to many friends and family’s support, to win a yard make-over contest. To me, applying for such a contest seemed futile, never for a moment thinking that I would win. But, as I said, due to many friends and family voting for us, we won. For me, the headache of yard maintenance with boys that never learned from their dad “how to” mow was an uphill battle. I would walk out into our yard and immediately grimace at all the work that needed to be done while simultaneously marveling at how great our yard was. I’m unbalanced I know. At any rate, we won this wonderful chance to beautify the outside of our house while making it so much more maintenance free. Their demo day (removing what needed to be out, to replace with fresh, new, and easy) wasn’t a day I was figuring would be that emotional…but it was.

 I place, more than I had ever thought, a lot of importance to this house. Like previous mentioned, I’m not sure how to quantify it, other than a person. Someone you love. Someone you trust. Not someone you are obligated to by blood. A warm, soft, beautiful something that you feel connected to. This house has such a presence, physically and spiritually. It has been my touch-stone over the last year and a half. Comforting me when I’ve been in doubt. Reassuring me when I’ve begun to question it. This house has holds a special significance in the deepest part of my heart.

 The attachments one holds can’t really be put into words. Fear. Anxiety. Transition. They are like a symbol of perseverance and the continuance of life. To me, this house has always been the strong-hold. The one thing that even if it falls in around our heads, we all have together, just the five of us. It has been our sanctuary and safe haven when we needed it. Pulling up to a new version of that, well honestly my mind was blown. Knowing that this place we call home, held so many more attachments to me than just an address.

 In this whole process hindsight has taught me how easy I may have had it in the beginning. It has given me a moment to appreciate that time is a miraculous thing. What once was, has to change as that is the only way to grow. The routine I once held, is changed up. Three are heading to school in less than a month. One is breaking free (screaming and kicking) of what once pacified him. While the façade changes, my heart still holds tight. In that moment I am able to appreciate what we’ve been through and look forward to our new reality. Good-bye summer. Good-bye yard. Hello the endless possibilities that still await us…